Introduction to Living with a Stoma.
Hi, I've been living with a colostomy stoma bag for 10 years now and I can remember it, as if it were yesterday, how scary and frightening it was to be told I would have a bag for life/that it would be permanent. I thought normal life was over. But I was wrong. Yes there were many changes and challenges but a full life was/is doable. I do most things I did BC (before the cancer and stoma.
I'd love to chat with anyone about anything to do with stoma's - if you need advice or support.
My Stoma nurses were wonderfully supportive and once I set my mind to it and learnt how to fit the stoma bag that was the start. I think I'd' have benefited from talking to someone in my position which is why I'm writing this blog. I've been lucky to have a lot of loving support around me which has helped.
Leaving the house was one of the first hurdles I faced - I thought the bag would burst/leak and I'd be humiliated and embarrassed (it didn't). Just going to the local shops was an ordeal - having to remember to take spare supplies with me in case of an emergency was a nuisance but I got used to it. Food could be a little tricky, especially with an illiostomy, but again you get used to it.
bowel cancer was the cause of me needing a colostomy stoma bag in the first place.
I needed three operations (uncommon) as I 'd developed inflammation/ adhesions of my intestines. So I then had another operation - an illiostomy which with the kidney disease I developed proved difficult. I eventually
ended up with a part reversal operation back to a colonoscopy.
I returned to full time work after the first two operations after a year. There's been ups and downs but things became easier as time passed. I still do all the things I love like swimming, dancing and paragliding in Northern Cyprus!
I thought I'd have to wear unflattering baggy clothes but I was wrong. Most people forget or don't know I'm an ostimist (and an optimist!) And that's the way I like it.I refuse to be defined by the stoma.
Enjoying hot chocolate in Switzerland, Christmas Market 2019.
Thank you for sharing your experience and story. You have such a strong, brave and beautiful soul. This account gives comfort and assurance for all those who may carry the stigma of what living with a stoma bag means. It’s refreshing and well needed. Can’t wait to read more!
ReplyDeleteBrilliant start to a great blog
ReplyDeleteIt was your idea. Thanks Gel. X
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ReplyDeleteIf anyone wants advice about foods that interact well or not with a stoma please feel free to ask. Some of it is pure trial and error.
ReplyDeleteI don't know if you can help but your blog was lovely and reassuring, so here goes! I had my stoma operation in January this year, anal cancer, and most of the time it's ok! This morning I found I'd passed a tiny bit of Pooh from my anus and all day, when going for a wee, there's a little discharge on the paper, when I wipe! Is this normal?
ReplyDeleteRegards, Moira.